Experiences Seeking Care for Ankylosing Spondylitis
Thank you for your participation in our survey on seeking care for AS/axSpA. The results of this survey will help us better understand the experiences people with AS/axSpA have while seeing their doctor, which can help us create educational resources for patients like you.
If you would like to participate in more surveys and studies like this one, please consider joining ArthritisPower, the first ever patient-led, patient generated research registry for people with autoimmune arthritis and related conditions.
You can make a difference in the fight against autoimmune arthritis and related conditions. Here’s how:
- Track your symptoms and treatments: Keep tabs on your health with tracking tools on your PC or smartphone.
- View your data over time: Empower yourself with personal data to better understand your symptoms.
- Share your information with your doctor: Get customized reports that summarize all the information you have logged.
- Make a difference: Speed the arrival of personalized medicine by helping researchers better understand how different treatments work for different people.
About Global Healthy Living Foundation
The Global Healthy Living Foundation is a 501(c)(3) nonprofit organization whose mission is to improve the quality of life for people with chronic illnesses (such as arthritis, osteoporosis, migraine, psoriasis, inflammatory bowel disease, and cardiovascular disease) by advocating for improved access to health care at the community, state, and federal levels, and amplifying education and awareness e!orts within its social media framework. GHLF is also a staunch advocate for vaccines. The Global Healthy Living Foundation is the parent organization of CreakyJoints®, the digital community for millions of arthritis patients and caregivers worldwide who seek education, support, activism, and patient-centered research through our ArthritisPower® (ArthritisPower.org) Research Registry. In response to the COVID-19 pandemic, GHLF started a Patient Support Program, informed by a patient council made up of people living with a wide range of chronic illnesses, that now serves more than 30,000 people. Via CreakyJoints, GHLF also hosts PainSpot (PainSpot.org), a digital risk-assessment tool for musculoskeletal conditions and injuries, and eRheum (eRheum.org), for telehealth and virtual-care support.