Download the Crohn's Disease Patient Guidelines
Whether you are newly diagnosed or have been an Crohn's patient for many years, it’s easy to feel overwhelmed by the whirlwind of information available about CD.
We created this resource as a trusted guide to help you become informed about managing daily life with Crohn’s.
The more knowledge you have, the more empowered and prepared you’ll be to raise your voice and advocate for yourself when you encounter issues that are important to your care and quality of life.
What's Inside
The first of its kind, this guide was developed and vetted by leading inflammatory bowel disease (IBD) experts and fellow patients. Importantly, you’ll find tips and advice from our IBD Patient Council, a group of patients living with ulcerative colitis and Crohn’s disease who advise GHLF on educational content and review resources like this to make sure they’re as helpful as possible to the patient community.
Our Crohn’s Disease Patient Guidelines are designed to help you get what you want, need, and deserve from your CD treatment journey. This will be updated and expanded regularly as new research, information, and treatments for Crohn’s disease become available.
The information in these guidelines should never replace the information and advice from your treating physician. They are meant to inform the discussion that you have with health care professionals, as well as others who play a role in your care and well-being.
The Global Healthy Living Foundation (GHLF) is a 501(c)(3) nonprofit organization based in Upper Nyack, New York. GHLF advocates for improved access to health care at the community, state, and federal levels, amplifying education and awareness efforts within its social media framework. Central to this advocacy are GHLF’s commitment to educate about the importance of diagnosis, early and innovative medical intervention, and long-term lifestyle improvement with the goal of improved health outcomes. GHLF is also a staunch advocate for vaccines.
GHLF is the parent organization of CreakyJoints® (CreakyJoints.org), the digital community for millions of arthritis patients and caregivers worldwide who seek education, support, activism, and patient-centered research through our ArthritisPower® (ArthritisPower.org) Research Registry. In response to the COVID-19 pandemic, GHLF started a COVID-19 Patient Support Program, informed by a patient council made up of people living with a wide range of chronic illnesses, that now serves more than 40,000 people. Via CreakyJoints, GHLF also offers PainSpot (PainSpot.org), a digital risk assessment tool for musculoskeletal conditions, and eRheum (eRheum.org), for telehealth support. GHLF provides personalized opportunities to patients via its 50-State Network to advocate for important state and national health care policies that directly impact their access to care.
These Crohn's Disease Patient Guidelines were made possible through the support of Takeda, a global biopharmaceutical company with corporate headquarters in Tokyo, Japan.
© 2021 GHLF All rights reserved
About the Editors
Dr. Theodore Fields
Theodore Fields, MD, FACP, is an Attending Rheumatologist at Hospital for Special Surgery and Professor of Clinical Medicine at Weill Cornell Medical College. He is the rheumatology medical editor of www.hss.edu, the HSS website providing comprehensive education on musculoskeletal disease treatment and prevention for physicians and patients. He is the Clinical Director of the Early Arthritis Initiative at HSS, which focuses on education of patients and physicians about early intervention in inflammatory arthritis. His special clinical interests are rheumatoid arthritis and gout. His most recent publications have focused on clinical aspects of gout and on improving education for patients with gout.
Willa Bryer-Douglas
Willa Bryer-Douglas was diagnosed with gout in 2013. Since then, she has researched the condition thoroughly on credited sources like PubMed or major hospital and medical school websites. She is a member of our CreakyJoints Gout Patient Council and hopes that these patient guidelines can help others living with gout control their disease.
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