Shilpa Venkatachalam, PhD
Director, Patient-Centered Research Operations and Ethical Oversight
Shilpa Venkatachalam, PhD, MPH, is the Director of Patient Centered Research leading the Patient Partners in Research, a group of patients with chronic and autoimmune conditions who are interested in engaging in research as more than just passive human subjects.
In addition, she manages several research projects including a collaborative research group on Autoimmune and Systemic Inflammatory Syndrome and the GHLF ArthritisPower research registry which is part of 20 Patient Powered Research Networks of the Patient Centered Outcomes Research Net. She has been a project lead on the Patient Centered Outcomes Research Institute Social Media and Research Toolkit engagement award which developed best practices for using social media to engage patients and other stakeholders in all phases of research, including disseminating evidence-based information.
Shilpa completed her undergraduate degree in Mumbai, before moving to the U.K. to complete a Masters in Literature at the University of Durham, and earned her PhD in Critical Theory at the University of Nottingham, U.K. She has worked as an academic in the U.K., the U.S and in the West Indies.
Following significant life events that required navigating health systems as patient and as caregiver, she earned an Advanced Master’s in Global Health from New York University, during which she also won the prestigious Paul Ambrose Scholars Program fellowship awarded by the by the Association for Prevention Teaching and Research. She was among 25 chosen by The Young Persons Chronic Disease Network in collaboration with American Cancer Society and the Harvard Global Equity Center for The Global Cancer Advocacy Training.
In addition, she has been a regular panelist for video conference presentations on Global Health Topics by the Ambassador’s Club at the United Nations as part of a UNITAIR initiative. She has international experience in healthcare, and has worked in India and in Chad in both private sectors and public sectors on chronic health disease related projects.