Who We Are

Meet Our Team

Our passionate team is dedicated to improving the lives of people with chronic illness.

Seth Ginsberg



Louis Tharp

Executive Director

Shilpa Venkatachalam, PhD

Chief Patient Centered Research and Ethical Oversight Officer

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Joseph M. Coe, MPA

Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada


David Curtis

Chief Technology Officer

Laurie Ferguson, PhD

Director, Education Development

Steven Newmark, JD, MPA

Chief Policy and Legal Officer


Kelly Gavigan, MPH

Chief, Data and Analytics Officer


Robert Popovian, PharmD, MS

Chief Science Policy Officer

Anne M. Sydor, PhD

Director, Research Development


Jim Bumgardner, MFA

Treasurer, Secretary and Director, Arts Outreach


Zoe Rothblatt, MPH

Director, Community Outreach


Corey Greenblatt, MPH

Director, State Policy and Advocacy


Susan Jara

Director, Patient Education

James Dybisz

Associate Director of Technology


Sarah R. Shaw

Associate Director, Diversity, Equity and Inclusion


Laura Stradford, MPH

Associate Director, Patient Centered Research and Epidemiology


Ryan Johnson

Senior Manager, Finance and Administration


Esteban Rivera, MS

Associate Director, Data Science and Economics

Erik Stone, MA

Associate Director, Learning Experience Design


Barbara Boyd-Floering

Patient Care Manager
Whelton Virshup CreakyJoints Arthritis Clinic

Ben Blanc, MS

Associate Director, Digital Production and Engagement

Adam Kegley_GHLF Website Photo

Adam Kegley, MA, MS

Associate Director, Global Partnerships


Angela Degrassi

Senior Manager, Patient Centered Research Operations and Engagement.

JP Summers

Senior Patient Advocate, Community Outreach Manager

Santiago Munoz Perez

Manager, Technology and Community Outreach

Shelley Fritz

Patient-Centered Engagement and Insights Manager

Organization Values

These are the ethical practices and qualities that guide the Global Healthy Living Foundation (GHLF):

  • Patient-centered: GHLF supports people with all forms of chronic disease and believes that patients should be the central decision makers about their care in collaboration with their health care providers. “No research about us without us.”
  • Empowerment: Through education, support, access to research and advocacy training, GHLF helps members of the chronic disease community feel confident in advocating for their best care.
  • Quality: GHLF strives to achieve outstanding results by listening and learning from the chronic disease community. We constantly evaluate and improve all aspects of our organization.
  • Collaboration: GHLF brings together and embraces different perspectives, skills, and knowledge. We partner with a diverse group of stakeholders who share the urgency of our purpose.
  • Positivity: GHLF’s cup is half-full. We push forward with optimism, working around obstacles and finding solutions to problems.
  • Dedication: We approach each day with a renewed focus because we are determined to support, educate, and learn about chronic disease until cures are discovered.
  • Inclusiveness: GHLF is committed to providing an inclusive, productive, and professional environment, where our employees, members, consultants, researchers, and guests work together with mutual respect.
  • Integrity: Honesty, accountability, and acting in good faith are central tenets of GHLF. We are transparent about how we conduct our work and responsive to questions raised about our mission, values, work, culture, and behavior.

Medical Disclaimer

The information contained within GHLF, CreakyJoints, and its various web sites and tools  is provided for general information purposes only. We do not give medical advice or engage in the practice of medicine. The organization under no circumstances recommends any particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

Non-Discrimination Statement

The Global Healthy Living Foundation is committed to equal opportunity for all full- and part-time employees, interns, volunteers, and contractors. It is GHLF policy that no one shall be treated differently, separately, or have any action directly affecting them taken on the basis of race, religion, national origin, marital status, sex, sexual orientation, gender identity, military status or disability where they are otherwise qualified or could be with reasonable accommodation. The immediate remedy for any act of discrimination shall be to end it, treat the individual equally, and, as much as practically possible, to eradicate any effects of discrimination. Discipline will be imposed where appropriate.

Our Partners

The Global Healthy Living Foundation relies on support of past and current partners, including corporate sponsors, government, non-government organizations, and foundation grants. We are grateful for the continued support of our research, education, support, and advocacy efforts. We do not ask for individual donations, and all of our programs and services are free to members of the GHLF community. See all our partners here.

Sponsorship information is available by contacting GHLF Executive Director, Louis Tharp at 845-348-0400 or email him at [email protected]

Conflict of Interest Policy

GHLF members of the Board of Directors must sign a conflict of interest statement annually. The purpose of this Conflict of Interest Policy is to protect the interests of Global Healthy Living Foundation, Inc. as a tax-exempt organization (“Organization”) when it is contemplating entering into a transaction or arrangement that might benefit the private interest of an officer or director of the Organization or might result in a possible excess benefit transaction. This policy is intended to supplement but not replace any applicable state and federal laws governing conflict of interest applicable to nonprofit and charitable organizations.

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