Education and support are a critical part of our mission to help people live better with chronic disease. When you’re diagnosed with a chronic illness such as migraine, arthritis, or cardiovascular disease, you have a lot of questions — from managing symptoms to finding the right treatments to making lifestyle changes to navigating the impact on personal relationships. GHLF provides various resources and programs to help make the chronic illness journey easier and less lonely.
Our aim is to inform and empower patients so they can improve their care and well-being.
All of our patient education is always available for free.
CreakyJoints® is a digital community for millions of arthritis patients and caregivers worldwide who seek education, support, advocacy, and patient-centered research. We represent patients in English, Spanish, and French through our websites and popular social media channels. Across our sites in the U.S., Australia, and Canada, as well as our Spanish-language site, people living with arthritis and related rheumatic and musculoskeletal conditions will find resources to help them learn more about and live better with their chronic diseases.
PainSpot by CreakyJoints® aims to educate and empower people experiencing pain to better understand their health, so they can get diagnosed and treated faster. It is an innovative algorithm-based website for patients with musculoskeletal diseases or injuries that features an interactive, easy-to-use pain-assessment tool, based on the same validated decision-making tools employed by health care professionals in a clinical setting. The first version of PainSpot was created by Doug Roberts, MD, an independent clinical rheumatologist with 30-plus years of experience diagnosing and treating patients with arthritis and musculoskeletal diseases. For more information, visit PainSpot.org.
Created by CreakyJoints®, eRheum.org is a website designed to help patients get the most from their telehealth appointments. Written in patient-friendly language, eRheum defines telehealth and how rheumatologists utilize it, provides patients with access to different videoconferencing portals to try with their physician, and explains how to make the most of quick-moving appointments. To learn more visit, eRheum.org.
COVID-19 Patient Support Program
The GHLF COVID-19 Patient Support Program provides education and support to people with chronic illnesses who have a higher risk for COVID-19 complications and have many concerns about staying safe and healthy. We provide informational articles, mental health tips, patient essays, and advice from autoimmune, infectious disease, public health, and mental health experts to help people understand how to manage their medical conditions during the pandemic. The program also provides access to digital community events to help connect patients and combat isolation. To learn more, visit the GHLF COVID-19 Patient Support Program.
GHLF provides our patient community with access to leading medical doctors, researchers, and health care policy experts via informational webinars that are conducted live, then recorded and published on our websites and YouTube channel. Topics have ranged from racial disparities in health care to vaccines to managing arthritis symptoms. Our webinars present cutting-edge and complex topics in health care and medical research in patient-friendly formats optimized for health literacy. They are interactive and allow patients to ask questions about topics that matter to them. To learn more, visit the webinar section of CreakyJoints.
#CreakyChats Twitter Chats
#CreakyChats is a monthly, patient-driven Twitter discussion that explores topics that are important to the arthritis and chronic disease community. These hourlong, moderated discussions provide a trusted environment for patients to connect, exchange information, and validate shared experiences. They are often cohosted with patient advocates, media outlets, medical experts, and fellow patient organizations. #CreakyChats often involve hundreds of patients and generate tens of millions of impressions on Twitter. To learn more, visit the #CreakyChats section of CreakyJoints.
GHLF is active in migraine education and advocacy, where we help patients understand how to manage migraine disease and advocate for better treatment. Our 86 Migraine campaign aims to raise awareness about the burden of migraine disease. Our Migraine Patient Guidelines and Migraine Caregiver Guidelines educate patients about managing migraine symptoms and finding the right treatment. To learn more, visit the migraine section of GHLF.