CreakyJoints Data Demonstrates Barriers to Treatment in Rheumatoid Arthritis


CreakyJoints Data Demonstrates Barriers to Treatment in Rheumatoid Arthritis




Jessica Daitch
Phone: 917-816-6712
Email: [email protected]

Poster to be Presented at the Annual European Congress of Rheumatology (EULAR 2018)

UPPER NYACK, NY (June 13, 2018) – On June 14, CreakyJoints® will present a poster at the Annual European Congress of Rheumatology (EULAR 2018) meeting in Amsterdam, Netherlands. Two additional abstracts were accepted for publication.

Utilizing the ArthritisPower™ research registry, which now boasts more than 15,000 consented patient participants, the poster titled, “Barriers to Rheumatoid Arthritis Treatment Optimisation: Real-World Data from the ArthritisPower Registry,” reports data from a registry sub-study of 257 rheumatoid arthritis (RA) patients who experienced high disease activity as measured by the RAPID3 (median 18.0 on 0–30 scale) despite 70 percent (180/257) being treated with DMARDS (non-biologic or biologic). However, of those, only 37 percent (67/180) were offered a treatment change at their last physician visit, with 72 percent agreeing to a switch (48/67). Most patients intensified their treatment (33/44, 75 percent) because their symptoms remained bad or worsened, whereas only 36 percent of patients elected to change therapies because they did not reach pre-determined treat-to-target goals.

“Our findings indicate that patients are highly deferential to their physician’s recommendations for treatment escalation,” said W. Benjamin Nowell, Ph.D., Director of Patient-Centered Research, CreakyJoints and an ArthritisPower co-principal investigator. “At the same time, it’s concerning that rheumatologists and patients may not be effectively engaging around treat-to-target goals even when symptoms, lab results, or patient-reported outcomes data reported via ArthritisPower warrant such discussion. This study suggests that people living with RA need to feel empowered to discuss and consider treatment escalation with their doctor when both agree that a change is merited.”

The study was conducted with support from UCB Pharma.

Overview of CreakyJoints Data at EULAR 2018

  • Barriers to Rheumatoid Arthritis Treatment Optimisation: Real-World Data from the ArthritisPower Registry
    Identifier: THU0159
    Poster presentation: June 14, 2018 at 11:45 a.m. CET.
  • Correlation Between RAPID3 and PROMIS10 in Patients with Ankylosing Spondylitis
    Identifier: AB0849
    Published abstract
  • Correlation Between RAPID3 and PROMIS10 in Patients with Psoriatic Arthritis
    Identifier: AB0904
    Published abstract

About ArthritisPower

Created by CreakyJoints and supported by a multi-year, multi-million dollar investment by the Patient-Centered Outcomes Research Institute (PCORI), ArthritisPower is the first ever patient-led, patient-centered research registry for joint, bone, and inflammatory skin conditions. The free ArthritisPower mobile and desktop application allows patients to track and share their symptoms and treatments while simultaneously participating in research in a secure and easy manner. ArthritisPower Patient Governors serve as gatekeepers for researchers seeking to access registry data or solicit the community to participate in unique, voluntary studies. To learn more and join ArthritisPower, visit

Media Contact: Jessica Daitch | Phone: 917-816-6712 | Email: [email protected]

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About Global Healthy Living Foundation
The Global Healthy Living Foundation is a 501(c)(3) nonprofit organization whose mission is to improve the quality of life for people with chronic illnesses (such as arthritis, osteoporosis, migraine, psoriasis, inflammatory bowel disease, and cardiovascular disease) by advocating for improved access to health care at the community, state, and federal levels, and amplifying education and awareness e!orts within its social media framework. GHLF is also a staunch advocate for vaccines. The Global Healthy Living Foundation is the parent organization of CreakyJoints®, the digital community for millions of arthritis patients and caregivers worldwide who seek education, support, activism, and patient-centered research through our ArthritisPower® ( Research Registry. In response to the COVID-19 pandemic, GHLF started a Patient Support Program, informed by a patient council made up of people living with a wide range of chronic illnesses, that now serves more than 30,000 people. Via CreakyJoints, GHLF also hosts PainSpot (, a digital risk-assessment tool for musculoskeletal conditions and injuries, and eRheum (, for telehealth and virtual-care support. Visit for more information.

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