Patient Groups: CMS Fails to Protect Health Care for all Utah Residents


Patient Groups: CMS Fails to Protect Health Care for all Utah Residents




Groups Disappointed that CMS Approved Partial Expansion in Utah

(March 29, 2019) WASHINGTON, D.C. – A group of 13 patient and consumer groups issued the following statement regarding the Centers for Medicare and Medicaid Services (CMS)’s announcement of the approval of Utah’s 1115 waiver partially expanding its Medicaid program:

“CMS’s decision to approve a partial Medicaid expansion in Utah is extremely disappointing. The approval of this 1115 waiver will limit the number of Utah residents in the Medicaid program and directly contradicts the voter-approved Medicaid expansion that was passed last November. The decision to approve another work requirement just two days after a federal judge struck down similar requirements in Arkansas and Kentucky is another unacceptable attack on patients’ access to health care coverage in the Medicaid program.

“The partial Medicaid expansion and work requirement, as well as new authority granted by CMS to let Utah cap enrollment in the Medicaid program, will limit access to Medicaid for tens of thousands of patients, leaving them without quality and affordable health care options. Full Medicaid expansion in Utah would allow approximately 150,000 low-income Utah residents to be eligible for Medicaid. This coverage would help patients access medications to manage chronic conditions, preventive services including cancer screenings, and many other treatments needed to stay healthy. Our organizations strongly encourage CMS and Utah to work together to expand the Medicaid program as voters intended to 138 percent of the federal poverty level ($29,435 for a family of three) without any financial or administrative barriers that will limit patients’ access to care.”


American Cancer Society Cancer Action Network
American Heart Association
American Lung Association
Cancer Support Community
Cystic Fibrosis Foundation
Epilepsy Foundation
Global Healthy Living Foundation
Leukemia & Lymphoma Society
March of Dimes
National Multiple Sclerosis Society
National Organization for Rare Disorders
National Psoriasis Foundation
Susan G. Komen

Media Contact: Jessica Daitch | Phone: 917-816-6712 | Email: [email protected]

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The Global Healthy Living Foundation is a 501(c)(3) nonprofit organization whose mission is to improve the quality of life for people with chronic illnesses (such as arthritis, osteoporosis, migraine, psoriasis, inflammatory bowel disease, and cardiovascular disease) by advocating for improved access to health care at the community, state, and federal levels, and amplifying education and awareness e!orts within its social media framework. GHLF is also a staunch advocate for vaccines. The Global Healthy Living Foundation is the parent organization of CreakyJoints®, the digital community for millions of arthritis patients and caregivers worldwide who seek education, support, activism, and patient-centered research through our ArthritisPower® ( Research Registry. In response to the COVID-19 pandemic, GHLF started a Patient Support Program, informed by a patient council made up of people living with a wide range of chronic illnesses, that now serves more than 30,000 people. Via CreakyJoints, GHLF also hosts PainSpot (, a digital risk-assessment tool for musculoskeletal conditions and injuries, and eRheum (, for telehealth and virtual-care support. Visit for more information.

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