A podcast that confronts head pain, head on.

        

5 Stars on Apple Podcasts

“Talking Head Pain” Episodes

Check out episodes of “Talking Head Pain” with Joe Coe below and be sure to subscribe for access to future episodes.

Welcome to part two of Joe’s interview with Dr. Alan Rapoport, Clinical Professor of Neurology at UCLA, past president of the International Headache Society, and the co-founder and CEO of BonTriage. In this episode, Joe and Dr. Rapoport discuss a topic very important to patients, medication overuse headache.

Join Joe on this special Talking Head Pain episode featuring Sarah Shaw (BIPOC Patient Advocate, Community Outreach Manager) and JP Summers (Patient Advocate, Community Outreach Manager). Sarah and JP get real and unpack a recent article that has caused controversy in the chronic disease community.

Joe, Sarah, and JP discuss the negative impact of clickbait articles surrounding chronic illness, turning anger into action, and the balance of posting the positives and negatives of living with a chronic illness on social media

In part one of a two part episode, this week on Talking Head Pain, Joe is joined by a long time headache medicine leader Dr, Alan Rapoport, clinical professor of neurology at UCLA, the past president of the International Headache Society, and co-founder and CEO of Bon Triage, a healthcare company that helps people better understand their chronic disease. Dr. Rapoport has been in the headache field since 1979, and has seen the immense amount of progress being made to help those living with the disease.

Join Joe and Doctor Rapoport as they discuss why Dr. Rapoport decided to specialize in headache medicine, the advances being made since 1979, and the different kinds of treatments that are now available to patients.

This week on Talking Head Pain, Joe is joined by longtime friend Julienne Verdi, mother of 4, a migraine and ankylosing spondylitis patient, lawyer, and the Executive Director of the Association for Headache Disorders Advocacy. The Association for Headache Disorders Advocacy advocates for policy change that improves the lives of those living with migraine through events like Headache on the Hill.

Join Joe and Julienne as they discuss living with two chronic illnesses, motherhood, and the important work she is doing at the Association for Headache Disorders Advocacy.

This week on Talking Head Pain, Joe is joined by Pascal Derrien, Executive Director of Migraine Ireland. Pascal shares how his team at Migraine Ireland is working to increase migraine awareness through workplace training, advocacy, and community outreach.

Join Joe and Pascal as they discuss the challenges of living with migraine in Ireland, the workplace training programs conducted by Migraine Ireland, and the cycling fundraiser Pascal started.

This week on Talking Head Pain, Joe is joined by Samuel Kelokates, a physical therapist specializing in treating migraine. Sam is no stranger to pain and stigma having lived with tension headaches and a visible disability. His unique experiences and education inform his physical therapy practice focused on helping people living with headache disorders.

Join Joe and Sam as they discuss non-pharmacologic options for migraine, practical physical therapy tips, and managing migraine triggers with the help of physical therapy.

In this episode of Talking Head Pain, Joe is joined by Elizabeth Leroux, MD, a headache specialist, former president of the Canadian Headache Society, and founder of Migraine Canada.

Join Joe and Dr. Leroux as they talk about starting migraine associations in Canada, the obstacles providers have when getting patients their treatments, and the important work being done by Migraine Canada.

On this episode of Talking Head Pain, Joe is joined by Dr. Nicole Rosendale, a neurologist and principal researcher of a study called Migraine, Migraine Disability, Trauma and Discrimination in Sexual and Gender Minority Individuals. Joe and Dr. Rosendale discuss the link between trauma and migraine, research as a form of activism, and the future of LGBTQ+ migraine research.

This week on Talking Head Pain, Joe is joined by Danielle Fujii, an environmental designer, migraine patient, and creator of Zden, a sleep tent designed to help people with migraine get a better night’s sleep.

Join Joe and Danielle as they talk about the kinds of environments that can trigger migraines, vacations ruined by migraine, and how Danielle came up with the idea for Zden.

This week on Talking Head Pain, Joe is joined by Dr. Sara Crystal, a migraine patient, headache specialist, and Medical Director of Cove, a telemedicine service providing access to specialized care to migraine patients. Join Joe and Dr. Crystal as they discuss dismissive providers, building trust during a virtual appointment, and how being on the right treatment plan can allow you to be present for whatever life throws at you.

This week on Talking Head Pain, host Joe Coe is joined by Namira Islam Anani, a lawyer specializing in human rights education and training and a graphic designer. While recovering from COVID in 2020, Namira noticed that her headaches were getting worse. This led her to seek care from a neurologist who opened her eyes to what she was experiencing.

Join Joe and Namira as they discuss long COVID, ableism in her profession, and the importance of creating and holding space.

In this episode of Talking Head Pain, Joe talks with author, journalist, and fellow at the Global Healthy Living Foundation, JP Summers. Join Joe and JP as they discuss the toll that migraine can take on independence, the experience of her child being diagnosed with migraine, and the joys of reporting from Comic Con.

This week on Talking Head Pain, Joe talks with Tom Dabertin, Executive Director and CEO of the National Headache Foundation (NHF). Tom uses his experience of having migraine since his teens to inform the work he does with NHF. Join Joe and Tom as they talk about the lack of headache specialists, being a father while dealing with migraine, and Tom’s role as the Chairman of an annual Pierogi Festival.

In this episode of Talking Head Pain, Joe is joined by fellow migraine advocate and friend Alicia Torborg. Alicia serves as the Executive Director of the Association of Migraine Disorders, an organization built on the pillars of research, education, and awareness.

Listen along as Joe and Alicia discuss research being conducted by AMD, the duo’s perilous journey hiking Camelback Mountain, the history behind #ShadesForMigraine, and Alicia’s most rewarding moments working in migraine advocacy.

In this episode of Talking Head Pain, Joe is joined by Nicky Smith, a migraine and dizziness advocate who was recently featured as a contestant on the hit trivia show Jeopardy. Nicky shares their experience about having chronic migraine and dizziness as well as why it was important to discuss the conditions on the national stage. They also talk about the importance of building a strong community of migraine superheroes.

In this special episode of Talking Head Pain, Joe speaks with Dr. Eric Kaiser, a professor and neurologist at the University of Pennsylvania. Learn about sleep and cannabis research presented at the American Headache Society, and the inspiring work being done to better serve LGBTQ headache and migraine patients.

In this special episode of Talking Head Pain, Joe speaks with Howard Rosen, the CEO of the American Headache Society. Learn about the history behind the American Headache Society — and how the research presented at their meeting helps patients and providers alike.

Joe talks with Robert Cowan, MD, about research on chronic/episodic migraine and how access barriers harm patients.

When migraine had her down for the count, Cat got back up and fought back. She drew from her martial arts training and experience living with migraine to create her non-profit Chronic Migraine Awareness, Inc. In this episode, Cat joins Joe to talk about what she’s learned during her journey and the advocacy work she does around the globe.

The way Jaime Sanders expresses herself is the key to managing her migraine. Whether it’s fashion, makeup, or hair, Jaime owns her unique identity, an identity which provides her an outlet for advocating for others with chronic illness. In this episode, hear why Jaime calls herself the Migraine Diva, and how it touches everything from her migraine advocacy to the need for self-care.

“I really try not to focus on what happened yesterday, or what needs to happen tomorrow,” says Jaime. “I need to reserve my energy for the 24 hours that I’m currently in.”

Before migraine, life was good for Cannon Tekstar. She had a big career with travel, people reporting to her, and invitations to parties. But when migraine struck, it all turned silent, including support from her so-called friends. In this episode, Cannon shares how living with hemiplegic migraine forced her to re-set her career and how she uses social media to support others living with migraine. 

It’s a revelation that reflects the depth of migraine pain. Shruti Suresh says during her worst migraine attack, she overdosed on pain meds and revealed she’d have rather die than feel the pain. Today, Shruti is a migraine advocate, shining a light on the emotional and mental health issues surrounding migraine. In this episode, Shruti talks about the systemic nature of migraine, and how we need to address all areas of health when living with chronic disease.

Living with migraine as a teenager can be complicated. You’re often misunderstood, teachers wonder if you’re lazy, fellow students question accommodations. In this episode, meet Ellie Donner-Klein, a young professional whose own experience dealing with migraine and getting a proper diagnosis as a teen propelled her to now advocate on behalf of others navigating life with migraine.

When you think of migraine many of us don’t think of or see Black men. In this episode, meet Qasim Amin Nathari, who takes us on his migraine journey while getting deep about the intersections of race, masculinity, and faith when it comes to managing migraine.

Migraine as a child. Migraine on vacation. Migraine at work. Whatever their age and wherever they are, people around the world struggle with migraine. In this episode, we hear from a leading migraine advocate who shares his journey and how he now helps people overcome the stigma of migraine.

“I would get these periods I sort of called them like a honeymoon response, where you’re so hopeful that it works that it actually does for a period of time,” says Carl Cincinnato, Executive Director of Migraine at Work and co-host for the Migraine World Summit. “But then you kind of run out of “hope-ium.” And all of a sudden you go back to your baseline of regular attacks.”

Although it’s been framed as a “middle-aged white woman’s disease,” migraine doesn’t discriminate; it affects one in seven people across all genders and race. But the right diagnosis is often more difficult to find for people in marginalized communities.

In the second of a two-part episode, Sarah Shaw and her doctor Courtney White, MD, discuss the need to educate the medical profession, especially in Black, Brown, and low-income communities, on the many symptoms of migraine so they can better serve patients in the BIPOC and LGBTQA+ communities.

As if migraine isn’t tough enough, imagine being a person in a marginalized community who must convince their doctor that their symptoms are real? Sarah Shaw went through six doctors before finding Courtney White, MD, who not only advocates for migraine patients but is one herself.

In the first of a two-part episode, Sarah and Dr. White discuss their migraine journeys, racial disparities in treatment, respect of the patient, and using social media to educate the BIPOC and LGBTQA+ communities.

“I am a neurologist and a headache specialist. I am also someone who does have migraine disease,” says Dr. White. “And I’ve gone through the experience of having difficulty finding a physician that would diagnose me and then treat me appropriately.”

In this EXTRA episode, host Joe Coe welcomes renowned migraine specialist, author and podcast host Dr. Lindsay Weitzel. Lindsay describes her worst migraine attack, strategies for coping with migraine attacks and minimizing their severity, and how living with migraine affects family dynamics.

“You find yourself saying, ‘oh my God, I’m going to die, I’m going to die.’ You need to turn that around because your thoughts are nerve signals just like your pain,” says Dr. Lindsay Weitzel.

Dreama, a housekeeper, shares her experience of working with migraine as someone who is self-employed and often doing physical work.

Sean, a retired member of the Canadian Air Force, recalls how he dealt with migraine while serving in the military and now how he helps other men get support.

*Content warning, this episode contains sensitive content around suicide.

Cara, an author, and her husband Seth, cofounder of GHLF, talk about the impact of migraine as a married couple who are raising children.

Sarah Reneé, a patient advocate, shares her experiences of navigating migraine care as a person in various marginalized communities.

Lori, Executive Vice President, Human Resources at Amgen, shares her migraine journey and discusses how HR professionals can support people living with migraine. Lori’s story teaches us that no matter who you are in the migraine and headache community, we all have similar struggles, and using our voice is one way overcome them.

Joe, a retired firefighter, describes how he became the hero in his own personal headache nightmare. Joe’s life experiences and advocacy teach us that it is never weak to get help.

*Content warning, this episode contains sensitive content around the events of 9/11 and suicide.

Danielle discusses the pressures of life with migraine in the age of social media, as well as difficulties of managing a career while living with this debilitating condition. Danielle makes the call for transparent, honest conversations with others and explains the value of forging connections within the migraine community.

Migraine Audio Guides

Need some quick information about migraine? Have someone in your life that doesn’t really understand this disease?

Our free Talking Head Pain Patient Audio Guides offer valuable information and insights from leading experts that will help make you more informed.

Check them out below and be sure to subscribe for access to future audio guides.

Get advice and information on how to navigate the complexities of the work environment with a migraine condition, as well as supporting others with migraine in the workplace.

The first step to proper treatment is getting a diagnosis. In this audio guide, we explore the importance of a proper diagnosis, how to get diagnosed, the causes and triggers of headache, and barriers to health care.

Learn more on the differences between headache disorders and common headaches, as well as acute and preventative migraine treatment options.

In this audio guide, we explore lifestyle changes and nonmedical therapies to help you live well with migraine.

Get advice and information on how to navigate the complexities of the work environment with a migraine condition, as well as supporting others with migraine in the workplace.

Behind the Mic

Joseph Coe, MPA

Host

Joseph Coe, the Director of Education and Digital Strategy at the Global Healthy Living Foundation, has been living with migraine since his teens. 

As a migraine patient advocate, Joe knows the power of speaking up and being proactive when managing his complex neurological condition. 

Through personal conversations with fellow migraine and headache patients, Joe explores the challenges, hopes and triumphs of his guests.

Tune into Talking Head Pain and hear how people like you have found ways to get relief.

Peter McAllister, M.D.

Neurologist, Medical Expert

Peter McAllister, M.D. Host Neurologist, Medical Expert Dr. McAllister is a board certified neurologist and director of The New England Center for Neurology and Headache. He holds clinical appointments at both Yale University School of Medicine and The Frank H. Netter School of Medicine at Quinnipiac University

As the former Director of the Headache Center, Concussion Center, and Clinical Research at Associated Neurologists of Southern Connecticut, Dr. McAllister is recognized as a “Top Doc’’ in Connecticut and New York, as well as a “Top Neurologist” by the U.S. News and World Report. He lectures nationally and has been the principle investigator on numerous clinical trials, as well as authored articles in the lay and scientific press. 

Dr. McAllister employs a holistic approach to diagnosis and treatment as a practitioner. His area of expertise includes: headache, concussion, Multiple Sclerosis, ADHD, Lyme Disease, and complex neurological conditions.

More Resources

Living with migraine isn’t easy, there’s much to learn about symptoms, management, and treatment. As a non-profit organization dedicated to education, research, and advocacy, GHLF has plenty of free resources available to get you started.

Men with Migraine

Men get migraine too and “maning up” doesn’t make you strong it just prolongs your pain and suffering.

Blue Light and Migraine

Feeling like a vampire? Learn how blue light can trigger migraine.

What Migraine Feels Like

We asked the Chronic Migraine Awareness nonprofit community what migraine feels like. Here’s what they said.

Migraine Patient Guidelines

Vetted by medical experts and people living with migraine disease, our Migraine Patient Guidelines help you navigate your treatment choices for migraine.

Migraine in the Workplace Report

While our survey data suggests that most employers understand migraine to be a common problem, it also suggests some degree of indecision or inaction surrounding effective accommodation and treatment.

Migraine Caregiver Guidelines

Our guidelines educate caregivers about treatment options available to their loved ones to help prevent and manage migraine attacks.

Subscribe for More Migraine Resources

By subscribing, you agree to receive emails from the Global Healthy Living Foundation. We will never sell your data. See our Privacy Policy.

Talking Head Pain is a new podcast series produced by the non-profit Global Healthy Living Foundation, and made possible with support from Amgen. Through personal conversations with fellow patients, host Joseph Coe explores the challenges, barriers, and disparities that exist when it comes to migraine and headache disorders.

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