“I was a totally different person before [experiencing fistulizing Crohn's. It taught me meaning and purpose. It gave me the desire to move the needle on how people are treated in the health care system.”
“I knew I had to treat my condition as a part of me and accept it if I wanted to live a life not defined by my disease. Crohn's disease has put me through a lot of challenges and made me the strong and resilient person I am today because it is a part of me.”
Talking about fistula symptoms to your providers and loved ones can feel awkward and even embarrassing — but these tips can help you start the conversation.
Exploring the unique challenges faced by LGBTQ+ people with IBD and ways to create more equitable, inclusive health care environments for better health outcomes.
We spoke with patient advocates and a gastropsychologist about some common (and harmful) myths about living with fistulas — and what you can do to overcome them.